Good news first - funding and plans are in place for the house extension- this will create a downstairs room for me with adjoining wet room/wc etc This is happening just in time as I feel the expedition up and downstairs is becoming somewhat difficult.
The time is almost here when I need to make the biggest practical adjustment to my life so far....
The debilitating and frustrating lack of mobility has been causing me a great deal of upset and resulted in me finally winding down a great deal of my life activity.I'm now using remaining resources and energy on my degree study program and associated voluntary roles - the fatigue associated with this illness is hard to absorb into day to day life , it is a fine balance between doing too much and being exhausted and equally doing too little and 'seizing up'.
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