The organismic self & self actualisation.

Week 6...

It's amazing how we strive to maximise our potential or can adjust to new situations....I think so, anyway. 

Even this predicament I find myself in brings new possibility and learning. I'm finding by refocusing and accepting that I am finding ways to be at peace with my terminal position. I have a window of opportunity to continue to help/support and be available to others in a variety of roles in my life. I intend to do this as long as I am able ..... I feel that life is about experiences shared and being present with others.

I am meeting various health professionals and others to help me understand what I am able to effectively manage in the short/medium term so I can adjust my life accordingly & am hopeful to work for a while longer.
Having had some physical adjustments done at home to help I'm more comfortable getting around and am able to get to the gym a couple of times a week to work on my deteriorating leg strength/co-ordination.

This week involves a lot of form filling out as I need to disclose my illness to various agencies & see if I am able to continue to drive for a while. I do hope so as I feel capable and safe - losing this will severely hamper my independence, I believe I have to have my driving capability assessed and go from there ???

This week brings some new therapy - yoga overview to see if this works for me & looking at a cycling project designed to support people with mobility/brain related syndromes it will be interesting to look at .

I'm also trying to find stuff to do that helps me maintain strength of mind and body , involving self study, reading, painting, research, drawing and even some jigsaws (to help with fine motor movements).

The main symptom of the genetic illness that I currently notice is my balance (ataxia) and poor co-ordination when walking, and a general 'fuzzy feeling' in my head- otherwise I feel like the normal me. I hope this can be sustained for a while as I would like to enjoy this Christmas with my family as it might prove to be determinative for me.

Must go ..... forms to fill out......  :-(