Week 5 : The road ahead....
The last week has been quieter in terms of appointments etc. so I have been working on studies, reflective work and planning ahead for the future- I have planned a couple of visits to places and people in the next month or so; places of significance in my life so far that I would like to reconnect with while I am able.
This week brings focus regarding the immediacy and prognosis of the prion disease with visits from professionals -considering the difficult slippery path ahead is challenging and upsetting, particularly when discussing end of life stuff....... and equally painful forms to fill out/complete/evidence and send off - the universe has still not presented a solution to all the bureaucracy and procedure.
I particularly liked this quote spotted this week which nicely encapsulates my current mood/approach:
Fatigue is presenting itself slowly, like a setting sun - I am finding my energy levels are not what they used to be as I constantly look for a balance between activity and rest to maintain the most productive self possible. I've settled on listening and observing myself - which sounds a little weird- and adjusting things as I go; not expecting to have the levels of energy I am used to be able to exert. Being kind to myself....and resting....lots!
My thoughts following today's appointment settle with my children/partner and how they are dealing with this 'stranger' who has entered our lives, uninvited and obtrusively manifesting itself in many aspects of daily life. I hope we all find the strength, support and faith to deal with the road ahead...
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