This week I felt a serious lack of energy towards the end of the week, as I had done a lot and over exerted my much depleted energy.....everything seems to take so long these days ! It takes me nearly an hour to get dressed in the morning :(
The week started with a fall in the bathroom as I struggle to get in the shower etc and had lost my footing and found myself in a heap on the floor lacking in dignity - but just got up and carried on - now sporting a well bruised wrist and leg. A reminder that things aren't to be taken for granted and to SLOW down....
Mid -week I went to visit a very special friend and her partner to look at a cycling project they are working on - aimed at supporting and developing skills of people with challenges either physical or neurological and enable them to enjoy cycling.....
Links to find out more are at :
http://positivespin.org/
http://www.cycletraining.uk
This was a great experience and re-ignited my enthusiasm for getting out on my bike. I've found whilst my walking (motor skills and balance) are difficult - riding a cycle is as easy as ever - so I've determined that the issues I am having is to do with messages not being sent/received by my lower limbs does not affect my balance sensation (a positive :)
I also took delivery of a wheel chair and other mobility aids & so have 'filed' them in the shed until such time as the need arises. I found this very upsetting as my fate was right there in front of me..... a certainty. But not one I intend to meet.
Never the less, the weekend was spent re-charging my batteries watching some rugby etc :)
Sadly my waking hasn't recovered too well and I am finding just getting around difficult without any aids of any sort. Managed to wash the car and cut the lawn (no help forthcoming) although it did take me nearly all day at my pace and ability level these days. Something I find so frustrating....
I am hopeful of some usefulness from the community physiotherapist when I finally get to see him or her??? In the mean time I will take it as easy as possible but still try to maintain a sense of purposefulness & energy.
I also await the fate of the DVLA as I have disclosed my illness to them and whilst I feel fit/able and willing to drive I am noticing my confidence in this strong skill previously is diminishing - I've decided to give my car to one of my kids soon as I want to hold onto it for sentimental reasons (my mum helped buy it just before her difficulties with this illness).
Lets see what the universe presents this week .....
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