Finding strength ,both physical and psychological is part of my current 'self-care' agenda & I think I am finding a healthy life balance, for now.
Tuesday was a very health focused day with an appointment to have leg braces measured to stop my legs from painfully 'locking out' or hyper extending, this is what has been causing me great pain and discomfort when walking and I was pleased to get a date for a 'fitting' in the next couple of weeks.
I think they look something like this .....
Chiropractor appointment followed ; to maintain back problems following issues relating to a long term injury. Much better now thanks to a great practitioner :)
Finishing up the day (Tuesday) with my first hydrotherapy session at the hospital.....
...again another great professional supported me in learning some exercises that I can with do with them once a week and at the local pool twice a week independently. All part of my plan to maintain leg movement and strength as long as I have decent co-ordination.
I think once the co-ordination goes completely then it is game over as far as the independent mobility goes, but for now I will carry on best as I possibly can.
The physical activity continued throughout the week with two sessions at the gym and even a few miles on the road cycle. It felt great to be out again - although it was very cold, it was invigorating :)
I've been using some of my spare time writing theoretical background stuff for a seminar due in early Feb, so this is keeping my creative juices flowing and stimulated. Heavily based on my life experience and the energy/focus that can be found when in an unfortunate situation such as mine. (not uniquely at all)
I have noticed a dizzy sensation becoming more prominent (ataxia) and my speech requires more concentration (dystharia), however externally feedback is that I remain pretty much the same, these changes are more evident if I haven't rested sufficiently of have over-done it.
My new rule is no more that 6 hours of activity per day & I've done fairly well with this - only slipped up one day over egging it ...
Good news at the end of the week was that my new motability car is ready for collection next week, this should help extend my ability to drive for a while longer :)
....... we will see....will post a picture next week (it's another batmobile) !!!
A fairly standard week to look forward to next week with a good 'social day' planned for Wednesday (this is my day to do whatever I wish !!!) brunch/coffee awaits ....
The project to extend the house and provide some downstairs space for me to live independently when the time comes is being pragmatically proposed with the support of family members - I am faithful that people in statutory bodies will see the benefit of this and pass funding/planning. If not the alternative is not very appropriate..... will fight hard on this one as it's for the benefit of my family, my dignity and as comfortable as possible end of life situation as possible.
Have a great week & remember; when you need to keep going -
"You just do it. You force yourself to put one foot in front of the other, and God damn it, you refuse to let it get you. You fight. You cry. You curse. Then you go about the business of living. That's how I've done it. There's no other way."
Elizabeth Taylor
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